"MS can take a hike for all I'm concerned"

February 24, 2011

Hey Rebismart - Happy one month anniversary! NOT.

One month has come and gone.  12 injections complete.

It's been a month of up and downs, but not nearly as horrible as I thought it would be.  Now that my boyfriend does my injections for the most part, the anxiety has passed.  Last night was the last 22mcg dose and I move up to 44mcg tomorrow.

It was time to move back to the dreaded stomach location.  My least favourite place.  It hurts, it stings, it leaves HUGE red marks.  I hate it.  My boyfriend set everything up, and didn't let me whine too much before he hit the button.  Once again, 13 seconds feels like an eternity!  It wasn't nearly as bad as my previous two stomach injections so I'm thankful for that.  We've started doing it as soon as I get home from work.  This stops be from being nervous and anxious all night leading up to the injection.  I like doing it earlier, it's much easier on my nerves!  Tomorrow night we'll do it as close to bedtime as possible though because I'm nervous that I will get some side effects with the double dose.

After my injection on Wednesday, the Rebismart told me that the cartridge was empty.  I was only two 22mg doses in with that vial, so I remember what the nurse had told me and I took the cartridge out and shook it a little bit.  I noticed there was an air bubble in there which freaked me out.  I put the cartridge back in the machine, and the Rebismart rescanned the cartridge and said I was good to go for another injection.  I called Multiple Support today and asked about the air bubble.  The nurse told me not to worry about it because they over fill the vials, and the air bubble won't be injected.  Whew.... I know I'm paranoid, but this is all new to me!!!

I need to get blood work done once a month for the first six months.  Rebif can be hard on the liver, so the blood work determines how my liver in functioning etc.  I'm not too worried about this in my case because I feel absolutely fine for the most part.  I would think if my liver was doing something bad that I would feel something?  Who knows.  The lab by my house opens at 7am so I thought I was being smart by going there early today on the way to my train.  Apparently I'm not the only smart person.  The waiting room was PACKED with a 15-20 min wait.... if I waited I would have missed my train and been late for work.  I have a very accommodating and cool boss, so she let me take off for an hour to go to a lab downtown.  Well, the thing about labs downtown - they are FULL of junkies.  It was a gross place to be, but it's over and done and my blood is being tested as I write this!  Cross your fingers for me - hopefully the results are good!

My fatigue is setting back in, but not as bad as it was previously.  I can make it through the day without taking an Alertec, but I'm on the couch as soon as I get home, and in bed by 10 at the absolute latest.  Leading up to 10 I slowly turn into a sleep deprived zombie.  I'm sleeping a little better on injection nights, but I still wake up several times through the night.  I'm a chronic toss and turner as is - throw some Rebif in there and I'm all over the map (or bed.)

Bedtime for me - I will post tomorrow night after my injection.  Wish me luck!

~Sarah

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