"MS can take a hike for all I'm concerned"

April 11, 2011

Hello Again!

So... Rebismart and I have made up.  We're friends again.  I started back on my Rebif last week, but I'll stick to 22mcg for awhile and see how my teeth problem works out.  So far so good, and I even did my last two injections BY MYSELF!  In my stomach no less.  During my two weeks off, I had some time to reflect on everything.  If this is all I need to worry about, and it's helping me, and giving me a better future, I need to suck it up.  I think I already knew this ;)

Good things are happening in my life.  The MS Walk took place on Sunday and was an AMAZING success!!  We woke up to pouring rain and I was convinced that some of my team mates may have cancelled - but to my surprise, everybody showed up!  Everybody had rain coats and umbrellas and huge smiles.  The MS Society handed out these signs that everybody was supposed to pin to their coats that read "I'm Walking for _______".  When I saw that people were writing Sarah, I have to admit I teared up a little bit.  Good thing it was raining and nobody noticed!!


We raised $2,479.82!!!!  We were the 7th highest fund raising team in Vancouver.  I think that's something to be proud of!!!  I will definitely participate in this event next year, and perhaps volunteer my time on some of the other events that the MS Society holds throughout the year.

I have also been invited to to attend the MS Ambassador Program Advisory Board in Toronto May 5 and 6th.  I received an email letting me know that all costs are covered (flight, hotel and food!) and I let them know that I would LOVE to attend!  The only downside is that currently I would fly in Thursday May 5th, stay overnight, attend the meeting Friday morning and fly back to Vancouver that afternoon!  I get tired VERY easily and I'm sure that 10 hours of flying in two days will ZAP me.  I'll worry about it once I receive confirmation of the flight arrangements etc.  Even though they've told me that I'm confirmed, I'm a little hesitant to get excited until everything is arranged.

Basically, life has been BUSY which is why I haven't been posting as much as I did in the past.  On top of everything I mentioned above, I have a 3 day camping trip coming up!  Road trips and camping are my absolute FAVOURITE THING in the world.  Out of all the trips I've been on, my favourite trip was a road trip we took to Oregon and back through Washington to Mt. St. Helens.  I had a migraine from hell for the ENTIRE trip, and one day after getting back had a major flare up and ended up in the hospital.  Despite feeling like crap for the entire trip, it's something I'll always remember.  Our next camping trip will be to Cape Disappointment in Washington.  Sounds great right?!  It's actually extremely beautiful, we'll be camping on the beach with the dog, and I can't wait.

After Toronto and Cape Disappointment, I'm heading to Vegas!!!!  I have a feeling I'm gong to be exhausted for the next four months.  It will be worth it though!!!!!

That's all I have for now.  It's time for Rebismart and I to hang out for a little bit. 

~Sarah

6 comments:

  1. Congrats on the fantastic invitation! You'll have so much fun in Toronto.

    The MS Walk was a blast! Not even the rain can stop us!!

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  2. Hey Sarah have been reading your blog as I too was about to start rebif with the rebismart it really helped me I now have had only one injection and I am so scared of when the dose goes up only slight headache and not much else with first injection next one tonight wish me luck . How are yours going now
    Michele
    Australia

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  3. Hey Sarah! It's June 3rd - let's get a move on with the blog - I want to learn more about your journey, and more often than once every two months!

    Lily and I raised $1500 as well - she got a nice jacket out of the deal.

    Gimme some details girl!

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  4. I've never even heard of the Rebismart.... I use the Rebiject and I bruise quite often. Dang thing is so fast and powerful and I've been using Rebif for well over a year so you think I would be used to it.
    I blog too. It's nice to have a community of MS'ers who share the same experiences. I'm glad I stumbled across your blog! (well, truth be told, I found you on Twitter through other MS'ers)
    http://multiplesclerosis120909.wordpress.com/
    @MSwarrior09

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  5. hey! so whats the deal with your alligence to rebismart hey?

    I was actually diagnosed with ms while i was living in Langley in 2005/moved back to northern MB to start Rebif on pharmacare here. I cant imagine giving up the control of syringes - I live eight hours away from my ms clinic!

    why'd you switch to rebismart? I'm intriged! (manual injections all the way) I hate welts.

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  6. I just got diagnosed in January 2012 and have started on RebiSmart this week. Second injection last night. I'm not a fan, but then again, who is a fan of having to do injections? I think looking at the alternatives, RebiSmart is a good fit for me - especially since my memory is affected and I'm a big wuss! Hope all is going well for you - I notice I'm about 12 months late to the party!

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